World Rare Disease Day will reach its fourteenth edition on February 28th 2021 and promotes equity worldwide as access to equal opportunities that can enhance the potential of people with rare diseases.
1. MODENA MO Italy, "Del Graziosi" Fountain in Largo Garibaldi
Join the #UNIAMOleforze campaign and receive the official t-shirt of Rare Disease Day! Wear it and post a photo on your social channels tagging @uniamomalattierare.
You can also show your support on social media using the campaign graphic materials for Facebook and Instagram which you can download from the Uniamo website page above.
Don’t forget to use the campaign official hashtags: #rarediseaseday #UNIAMOleforze and tag @uniamomalattierare and @eurordis.
The following 29th January at 12.00am a press conference will be held on Zoom for the launch of the spot created by UNIAMO FIMR and directed by Maurizio Rigatti for Rare Disease Day. You can join this event by registering at the following link: Webinar Registration
Watch the spot here #UNIAMOleforze - Spot Giornata Malattie Rare 2021 - UNIAMO - YouTube and share it using the hashtags #UNIAMOleforze #RareDiseaseDay and tag @uniamomalattierare. Uniamo spot, starring Italian actress Diana del Bufalo and directed by Maurizio Rigatti, will be broadcasted soon on Mediaset and Sky networks.
You will find all the information about Rare Disease Day, you will be able to receive the official t-shirt and become part of UNIAMO SOCIAL WALL: a space where we can finally be close to one another, UNITED not to leave anyone behind. Discover the page UNIAMO LE FORZE – Uniamo FIMR Onlus and upload and share your photo using the hashtags #UNIAMOleforze #RareDiseaseDay and tag @uniamomalattierare.
On Monday, 22nd February 2021 at 10.00am Rare Disease Day 2021 Main Event will be held on Zoom. The event will be coordinated by UNIAMO FIMR onlus, the Italian Ministry of Health and by the Rare Dieseases National Center of Istituto Superiore di Sanità. Join this event by registering here: Webinar Registration - Zoom
On Thursday, 4th March 2021 at 10.00pm UNIAMO FIMR closing press conference for Rare Disease Day 2021 will be held on Zoom. Join this event by registering here: Webinar Registration - Zoom
6 continents, 6 portraits, 6 heroes, 6 lives. Rare Disease Day shines a light on the global and diverse community of over 300 million people - men, women and children, adolescents, young-adults, adults, seniors.
Here are the stories that will feature in this year's Rare Disease Day global campaign: each of these 6 stories present individuals living with a different rare disease, each of them facing similar challenges. Find out more about them on Rare Disease Day ® 2021 at the page Rare Disease Day ® 2021 - News
You can also join Rare Disease Day by sharing your story with others and sending a message of solidarity! You can write about your personal experience and also submit photos or a video testimonial by visiting the designated page Rare Disease Day ® 2021 - Tell your story!
BLACK PEARL AWARDS is the annual global event held by EURORDIS to recognise the outstanding achievements and exceptional work of people making a difference for the rare disease community.
With the Patronage of