GFB partners with Limb Girdle Muscular Dystrophy Awareness Day, (LGMD Awareness Foundation, Inc. is anon-profit organization) dedicated to raising awareness of Limb girdle muscular dystrophy globally. In partnership with other Limb girdle muscular dystrophy associations, it aims to provide accurate educational information and resources for the LGMD community and public.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 944 rare disease patient organisations in 73 countries.
We are the voice of 30 million people affected by rare diseases throughout Europe.
GFB is part of Associazioni in rete of Telethon, with the objectives of collaboration, participation and sharing to improve the lives of people affected by a rare genetic disease and to advance together towards
GFB is one of the 61 entities involved in the Research4life network, a space where to inform the public (citizens, institutions, media and the scientific world) and propose ideas for the development of biomedical
GFB participates in the Consulta Malattie Neuromuscolari Piemonte, a network that brings together 14 associations and groups of patients with neuromuscular diseases operating in the territories of Piemonte and Valle D’Aosta in Italy.
GFB is a member of the CAMN Neuromuscular Diseases Association Coordination, a common front, a force capable of deepening and supporting the development, on a national scale, of scientific, political and social issues concerning muscle pathologies.