LET'S MEET PDF Print E-mail

 

LET'S MEET

 

 

 

GFB is proposing an international Zoom meeting, “LET’S MEET”, to celebrate the LGMD Awareness Day. It will involve associations and patients from several foreign countries and it will be  held entirely in English. We are going to give you more details about the project, as follows. Registrations are already open, as shown.

 

The project

GFB is organizing an international call with patients and associations of patients affected by different types of limb girdle muscular dystrophies. GFB has already organized some calls with Italian patients to share the different problems that characterize the Limb Girdle Muscular Dystrophies and now would like to share them to all the patients.

This call is addressed to the patients in touch with GFB through various association channels and they will be contacted personally by the association by email or other means of communication.

 

Aim of the project

The aim  of the call is putting in the network various families and associations of limb girdle muscular dystrophies in order to know each other, to cooperate and to exchange information.

 

How it performs

The call is in English, using the Zoom platform. During the call, in real time, a short simultaneous translation in Italian will be available, by using the chat. Given the different time zones, a time suitable to the several involved countries has been found.

 

When

On September 30th 2020 at 17.00 Italian Time, 11am USA East time, September 30th is the LGMD Awareness Day. The call will last 1 hour and 30 minutes.

 

Topics of the call

Each group of patients or each patient can introduce themselves and speak about the different roles they play in the limb girdle muscular dystrophies issue, or they can just listen to the others.

You’ll let know how to participate when signing up or later on.

 

Terms

Everyone is  required to speak English and because the colour of that day is lime green, each participant is kindly asked to wear a green garment.

 

Registration

Registration is compulsory. You can send an email to This e-mail address is being protected from spambots. You need JavaScript enabled to view it (as soon as possible). Upon confirmation, you’ll be contacted and specific instructions will be provided.

When registering, patients will say whether they want to speak or not; the timeframe is 2 or 3 minutes for single patients and 5 minutes for associations.

 

Material

The call will be recorded and, then, it will be possible to have an English transcription of it.

 

 
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