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2016

March 14th-18th 2016: Partecipation of the GFB at the  Myology 2016 Congress - Lyon FR

 

 

2015

May 22th 2015: Second meeting of the LGMD EuroNET, to calls for Horizon 2020, in the 15th National Congress AIM, Friday, 22 May 2015,  15.15 to 16.15, Naples Italy.

October 17th 2015: Partecipation at "Neuromuscolar alliance: the point of view of the associations", Padua

 

2014

Second congress of GFB "LGMD DAYS: Prognosis and treatment in LGMD", Venice, October 15th-17th 2014.


2013

First National congress GFB "SARCOGLYCANOPAThY: WHAT NEXT? Sarcoglycanopathy and limble-girdle muscular dystrophy, scientific research and clinical aspects" Milan 19th  Aprile 2013.  Speakers of the congress: Jerry Mendell, Louise Rodino-Klapac, Vincenzo Nigro, Pascal Laforet, Isabelle Richard, Massimiliano Cerletti, Saverio Tedesco, Doriana Sandonà, Gian Maria Fimia, Angela Berardinelli, Paolo Banfi, Giacomo Comi, Claudio Semplicini, Robert Pleticha.

Parteciipation of the  GFB  at the XVII International Convention  of Telethon at Riva del Garda TN, 10th-13th  march 2013.


2012

THE GFB was at THE EUROPEAN CONFERENCE OF RARE DESEASES AND ORPHAN PRODUCTS, 23 TO 25 May 2012 BRUSSELS, BELGIUM

The GFB has partecipated at the  conference: THE EUROPEAN CONFERENCE EPIRARE, INTERNATIONAL WORKSHOP RARE DISEASE AND ORPHAN DRUG REGISTRIES, 8-9  OTTOBRE 2012, ROMA.

 

2011

THE GFB was at the TREAT-NMD INTERNATIONAL CONFERENCE IN GENEVE SWITZERLAND, 8-11 NOVEMBER 2011

THE GFB was at the XVI TELETHON INTERNATIONAL CONVENTION - RIVA DEL GARDA TN ITALY, 7-9 MARCH 2011

 

Everybody to the mountains with the “trekking chair”

Some among us loved mountains, summer trekking, mountaineering ski, winter cross-country skiing. It happened that because of our children disease we had to leave our loved mountains.

But now we found a way to come back: the “Joelette”, is an aid towed by three people.

Since 2010 we organized some hikes nearby Sondrio mountain district. We think to be able to use it also in winter, on the snow, changing wheels with ski.

Then it is our wish to participate to the Spanish pilgrimage to “Santiago de Compostela”, along the last 100 kilometres of the way.

 

 

2016 EVENTS

March 20th 2016 - Giornata a Pescegallo (SO) e prova Dualsky con gli Amici Sciatori di Talamona e Enjoy Sky Sport Onlus"

corso di sci a Pescegallo

corso di sci a Pescegallo 1

17 aprile 2016 - Mostra  Bauma 2016  - Monaco Germania

24 aprile 2016 - Spettacolo teatrale presentato dal "Piccolo teatro delle Valli" di Morbegno.

29 aprile 2016 - estrazione lotteria del GFB ONLUS "Tu doni ... Loro si curano - ristorante La Locanda di Talamona

15 maggio 2016 - Giornata a Bema (SO), in collaborazione con il Gruppo della Gioia e la Pro Loco Bema

 

2015 EVENTS

March 19th  2015 - Entertainment with the Arnaldo Mangini comedian,  international impersonator of  Mr. Bean and Dedio, edited by Marvel Show

aprile 2015 - Terme di Bormio (SO)

24 aprile 2015 - Spettacolo teatrale dal titolo "La famiglia dell'antiquario" di Carlo Goldoni presentato dal Piccolo teatro delle valli di Morbegno, a sostegno del GFB ONLUS.

17 maggio 2015 - Giornata a Bema (SO), in collaborazione con il Gruppo della Gioia e la Pro Loco Bema

18 maggio - 11 giugno - pellegrinaggio a Roma di Marco Gavazzi come ambasciatore del GFB ONLUS

14 giugno 2015 - partecipazione a Passteggiando, passeggiata enogastronomica nella riserva naturale Pian di Spagna (SO)

12 Luglio 2015 - Incontriamoci sul Pioverna - Taceno Valsassina LC - Giornata per i disabili.

March 19th  2015 - Entertainment with the Arnaldo Mangini comedian,  international impersonator of  Mr. Bean and Dedio, edited by Marvel Show

August 8th-11th 2015 - II annual meeting of the families of the GFB ONLUS in Valmalenco

August 9th 2015 - Trip on the Bernina with the red train from Tirano to St. Moritz

August 10th 2015 - Day at the  Palu lake in  Chiesa Valmalenco by cableway

11 agosto 2015 - Giornata alle dighe di Campo Moro  e pranzo all'alpe Campagneda - Lanzada (SO)

10 ottobre 2015 - Incontriamo i parlamentari locali - Talamona

11 ottobre 2015 - Terzo pranzo sociale del GFB ONLUS "Happy Fish"  - Sorico (CO)

1 novembre 2015 - 6 Ruote di Speranza Autodromo di Monza (MB)

22 dicembre 2015 al 6 gennaio Presepe GFB ONLUS - Talamona

 

2014 EVENTS

March 7th  2014 -  "con tutto il bene che ti voglio" theater in Morbegno , troupe "Fil da fer" di Dubino.

May 4th  2014 - Walking in Bema (SO) Italy

May 17th 2014 - "Fare musica insieme" meeting choral Talamona (SO)

May 22th  2014 - EXPOSANITA' 19th international exhibition at the service of care and health - Bologna

July 6th  2014 - The mountain for all - day at the refuge Marinelli-Bombardieri   Valmalenco SO

July 27th 2014 - Dosso del Sole Walking - Bema SO

Video camminata a Bema 2014

August 7th-10th  2014 - First annual meeting of the families of the GFB ONLUS - Campitello TN

August 16th  2014 - Laghi di Porcile day   Tartano SO

Video salita alla croce di Tartano

August 23th  2014 - ANMIL DAY alpe Boron - Isolaccia SO

September 7th  2014 - Gran Prix  Formula 1 -  Monza MB

September 7th  2014 -  Paniga walking SO

November 1th 2014 - 6 Wheels of hope  -  Monza autodrome MB

November 9th  2014 - Second social lunch of GFB Onlus "Happy Fish" Sorico (CO)

 

2013 PROGRAM

12th  May 2013 - Walking in Bema (SO) Italy

15th June 2013 - Grumello Walking - Montagna in Valtellina (SO) Italy

28th July 2013 - Dosso del Sole Walking - Bema SO

11th August 2013 - Palù lake walking, Feast of Christ of the Deep - Chiesa Valmalenco SO - Italy

1th September 2013 - Paniga walking - Morbegno  SO

8th September 2013 -  Gran Prix  Formula 1 -  Monza MB

29th September 2013 - Walk of life for Telethon -  Sforzesco Castle Milano

20th October 2013 - First social lunch of GFB Onlus "Happy Fish" Sorico (CO)

1th November 2013 - 6 Wheels of hope  -  Monza autodrome MB

13th November 2013 - Audience with the Pope  at  S. Pietro Roma

16th November 2013 -  Bormio Thermae (SO)

 

2012 PROGRAM

6th  May 2012 - Grumello Walking - Montagna in Valtellina SO Italy

12th  May 2012 -  Piona Walking - "Il Gabbiano" community - LC Italy

31th  May 2012 - School and solidarity - Passo San Marco -  Madonna delle Nevi shelter - BG Italy

In collaboration with UNICEF of Sondrio and Bergamo, CAI of Morbegno SO and  Alta Val Brembana BG

17th June 2012 - Shelter of the Court walking  - Rasura SO - Italy


1st  July 2012 - Gerolese walking- Val Gerola (SO) Italy


8th  July 2012 - Religious function to Pisello top - Talamona (SO) Italy

View from the top - video

2nd  september 2012 -  Aido Walking Talamona (SO) Italy

16th september 2012 -  "Giugni" trophy Albosaggia (SO) Italy


22nd  september 2012 - Vezio castle walking (LC) Italy. In collaboration with the  group of joy of Talamona.

 

2011  EVENTS

8th  May 2011 -  Grumello walking - Montagna in Valtellina SO - Italy

4th June 2011 -  Bruno Sassella Memorial II - Rasura SO - Italy

26th June 2011 - Shelter of the Court walking  - Rasura SO - Italy

10th  July 2011 - Religious function to Pisello top - Talamona SO - Italy

On the top - video

Towards the woods - video

It begins to rise - video

higher and higher - video

In the middle of the scree - video

The path becomes difficult - video

Nothing stops us - video

A challenging step - video

8th August 2011 - Meeting and walking in Val di Mello - Valmasino - SO - Italy

14th August 2011 - Palù lake walking, Feast of Christ of the Deep - Chiesa Valmalenco SO - Italy

2nd  October 2011 -  AIDO walking - Talamona SO - Italy

9th october 2011 - Eats around - Food and wine walking - Brivio LC Italy

 

2010 EVENTS

5th June 2010 - Grumello walking - Montagna in Valtellina SO - Italy

4th  July 2010 - Religious function to Pisello top - Talamona SO - Italy

Down the snowfield - video

No obstacle stop us - video

On top with the wheelchair - video

5th  Settember 2010 - Nordic Walking - Tirano SO - Italy

September 2010 - AIDO walking- Talamona SO - Italy

 
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