NEWS


LET'S PARTICIPATE WITH GFB AT THE RARE DISEASE DAY - FEBRUARY 28th 2021

| News

2021 - PRESS RELEASES

| GFB'S Press Releases

LGMD CAB

| Scientific research

sarepta community bulletin: covid-19 vaccination and gene therapy

| News

parent project usa: watch covid-19 vaccination & duchenne what you need to know

| News

MANDINE: innocence in combat

| Experiences and stories

Matis, silent warrior with LGMD2D

| Experiences and stories

Mélanie, explorer of the world and of science

| Experiences and stories

The Story of Arthur with Gamma-Sarcoglycanopathy

| Experiences and stories

Genethon's first LGMD biotech

| News

international webinar about LGMD and gene therapy

| News

Sarepta Therapeutics Investigational Gene Therapy SRP-9003 for the Treatment of Limb-Girdle Muscular Dystrophy Type 2E

| News

The man investigating his rare disease: "There are many questions to be answered"– Carles Interview

| Experiences and stories

CHRIS CALABRESE STORY AND HIS YOUTUBE CHANNEL

| Experiences and stories

patient-led listening sessions summaries: LGMD

| Experiences and stories

PONTI TELEMEDICINE PROJECT

| News

MUSCLE DIVERSITY THE PROJECT BY CARLES SANCHEZ RIERA

| Experiences and stories

SAREPTA THERAPEUTICS HAS ANNOUNCED POSITIVE DATA FOR SRP-9003 GENE THERAPY TRIAL

| News

2020 - PRESS RELEASES

| GFB'S Press Releases

EMBRACING THE JOURNEY WITH LGMD: KATHERINE

| Experiences and stories

Building an LGMD support network: Rania

| Experiences and stories

One family's diagnostic journey to LGMD: Ben and Nikki

| Experiences and stories

When LGMD is misdiagnosed: Chris

| Experiences and stories

THE SIGN AND SYMTOMPS THAT POINTED TO LGMD: AUSTIN

| Experiences and stories

Events 2020

| Events

MEETINGS AND CONGRESSES 2020

| Meeting and conferences

carles sanchez riera: Tv interview

Everybody to the mountains with the “trekking chair”

| Events

OWEN STECKLER

DYSTROPHY AND ICTUS: "BUT NOW I GRADUATE" - MURARO ALESSIA

| Experiences and stories

WHEN AN ASSISTANCE DOG IMPROVES YOUR LIFE

| Experiences and stories

2019 - PRESS RELEASES

| GFB'S Press Releases

Events 2019

| Events

Patrick - Lgmd Awareness Foundation - November 21th 2019

| Experiences and stories

INDEPENDENCE IS TO KNOW HOW TO MEASURE WITH YOURSELF - MARTA MIGLIOSI

| Experiences and stories

DR. JERRY MENDELL STORY

| Experiences and stories

The Frech Lgmd patient group - LGMD Awareness Day - March 27th 2019

| Experiences and stories

BEATRICE AND MARCO STORY AND THE BIRTH OF GFB

| Experiences and stories

MEETINGS AND CONGRESSES 2019

| Meeting and conferences

Conquistando Escalones - LGMD Awareness Day - January 27th 2019

| Experiences and stories

INTERVIEW WITH LAURA, ALESSIA AND MATTEO – SPAZIO LIBERO – RAI PARLAMENTO

| Experiences and stories

2018 - PRESS RELEASES

| GFB'S Press Releases

Events 2018

| Events

Carles's interview – Spazio Libero

| Experiences and stories

GFB ONLUS - LGMD Awareness Foundation - November 18th 2018

| Experiences and stories

HEIDI - lgmd awareness foundation - november 6th 2018

| Experiences and stories

dr. linda lowes - lgmd awareness foundation -

| Experiences and stories

majed - lgmd awareness foundation - July 13th 2018

dr. louise rodino kaplac - lgmd awareness foundation - march 4th 2018

| Experiences and stories

MEETINGS AND CONGRESSES 2018

| Meeting and conferences

2017 - PRESS RELEASES

| GFB'S Press Releases

Events 2017

| Events

Alessia's Story - Spazio Libero - december 1, 2017

| Experiences and stories

THE CARDIAC TRANSPLANT OF ALESSIA

| Experiences and stories

INTERVIEW WITH VOLA BEATRICE - RADIO FINESTRAPERTA

having two kids with muscular dystrophy has changed how we view the future. We sieze every chance to enjoy the time we have

| Experiences and stories

Systemic AAV-Mediated β-Sarcoglycan Delivery Targeting Cardiac and Skeletal Muscle Ameliorates Histological and Functional Deficits in LGMD2E Mice.

MEETINGS AND CONGRESSES 2017

| Meeting and conferences

2016 - PRESS RELEASES

| GFB'S Press Releases

Events 2016

| Events

from canazei in italy: rosanna

| Experiences and stories

ALESSIA A NEW LIFE WITH JARVIK 2000

MEETINGS AND CONGRESSES 2016

| Meeting and conferences

2015 - PRESS RELEASES

| GFB'S Press Releases

Events 2015

| Events

β-Sarcoglycan gene transfer decreases fibrosis and restores force in LGMD2E mice

Clinical and genetic spectrum in limb-girdle muscular dystrophy type 2E

MEETINGS AND CONGRESSES 2015

| Meeting and conferences

Events 2014

| Events

MESSAGE FROM ROSANNA TO EMANUELA

| Experiences and stories

EMANUELA's STORY

| Experiences and stories

MEETINGS AND CONGRESSES 2014

| Meeting and conferences

ALESSIA MURARO IN THE RAI STUDIES FOR TELETHON

| Experiences and stories

Events 2013

| Events

EMANUELA POZZAN – FIRST NATIONAL CONGRESS GFBET

| Experiences and stories

PAOLA MAGGIOLO – FIRST NATIONAL CONGRESS GFB

| Experiences and stories

MEETINGS AND CONGRESSES 2013

| Meeting and conferences

Events 2012

| Events

LAURA: THERAPEUTIC AND REHABILITATIVE INDICATIONS IN BETA-SARCOGLICANOPATHIES

MEETINGS AND CONGRESSES 2012

| Meeting and conferences

Events 2011

| Events

MEETINGS AND CONGRESSES 2011

| Meeting and conferences

Events 2010

| Events

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