To register to the GFB patient register, simply fill in the registration form in all its fields.
Any amount you donate to the Research Fund will be a real help in the fight against Beta-sarcoglycanopathies and other forms of muscular dystrophy.
The group is very large, so it is best to send them to private profiles to receive messages from the association, any replies or comments.
Clinical studies for Sarcoglycanopathies
In total, the GFB now counts 548 patients affected by sarcoglycanopathy, divided according to the following table:
On the GFB Onlus page you can consult the distribution of patients in Italy and abroad.