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Register to GFB Patients register

To register to the GFB patient register, simply fill in the registration form in all its fields.

Upload your medical report

In this form, you can upload your medical reports to be included in the GFB Foundation's new patient registry, the “GFB Sarcoglycan Registry.”

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GFB Information Point

It is availble from Monday to Friday, from 9 am to 12 pm.

Call +39 3347589762 or send an e-mail to segreteria@beta-sarcoglicanopatie.it

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Support Scientific Research

Any amount you donate to the Research Fund will be a real help in the fight against Beta-sarcoglycanopathies and other forms of muscular dystrophy.

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Subscribe to the GFB Newletter

Sign up to the GFB Newletter

GFB SCIENTIFIC WEBINARS

Watch GFB's scientific webinars for LGMD patients

Clinical studies

Clinical studies

 Clinical studies for Sarcoglycanopathies

Clinical trials

Clinical trials

Clinical trials for Sarcoglycanopathies 

Table of patients affected by LGMD 2C-2D-2E in the gfb

In total, the GFB now counts 696 patients affected by sarcoglycanopathy, divided according to the following table:

tabella pazienti

On the GFB Onlus page you can consult the distribution of patients in Italy and abroad.

Sign Up Today!

Sign up to be included in the GFB Lgmd Patient Network where you will receive cutting edge research updates from the leading experts in the world and also be invited to hear about new clinical trials.
Anyone can join the GFB Lgmd Patient Network.
 
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