To register to the GFB patient register, simply fill in the registration form in all its fields.
It is availble from Monday to Friday, from 9 am to 12 pm.
Call 0342 236477 or send an e-mail to This email address is being protected from spambots. You need JavaScript enabled to view it.
Any amount you donate to the Research Fund will be a real help in the fight against Beta-sarcoglycanopathies and other forms of muscular dystrophy.
In total, the GFB now counts 696 patients affected by sarcoglycanopathy, divided according to the following table:
On the GFB Onlus page you can consult the distribution of patients in Italy and abroad.
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