Supporters

supporters 2026

Written on 13 April 2026. Posted in Supporters.

15€	Donazione NN per la ricerca scientifica da Roma
45 €	Donazione NN per la ricerca scientifica
60 €	Donazione NN per la ricerca scientifica
50 €	Donazione NN per la ricerca scientifica
25 €	Donazione NN per la ricerca scientifica
50 €	Donazione NN per la ricerca scientifica
1966 €	Contributo NN
338€	Contributo NN

2549€	TOTALE

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Supporter's privacy information

Written on 13 November 2025. Posted in Supporters.

Privacy Notice pursuant to Articles 13–14 of EU Regulation 2016/679

Data Subjects: Supporters and Donors

GRUPPO FAMILIARI BETA-SARCOGLICANOPATIE, as Data Controller of your personal data, pursuant to and for the purposes of EU Regulation 2016/679 (hereinafter “GDPR”), hereby informs you that the aforementioned regulation provides for the protection of data subjects with regard to the processing of personal data and that such processing will be based on the principles of fairness, lawfulness, transparency, and protection of your confidentiality and rights.
Your personal data will be processed in accordance with the legislative provisions of the above-mentioned regulation and the confidentiality obligations provided therein.
Purpose and legal basis of processing: in particular, your data will be processed for the following purposes related to the implementation of obligations arising from legal or contractual requirements:

Management of relationships with supporters.

Your data will also be processed for the following purposes related to compliance with legal obligations:

Mandatory legal obligations in the fiscal and accounting fields;
Management of donations and related receipts.

Your personal data may also, subject to your consent, be used for the following purposes:

Invitations to events, initiatives, and updates on supported projects.

Providing data for the above purposes is optional, and any refusal to process such data will not affect the continuation of the relationship or the adequacy of the processing.

Processing methods. Your personal data may be processed in the following ways:

manual processing using paper archives;
processing by electronic means.

All processing is carried out in compliance with Articles 6 and 32 of the GDPR and through the adoption of appropriate security measures.

Your data will be processed only by personnel expressly authorized by the Data Controller and, in particular, by the following categories of authorized personnel:

Administration office.

Communication: your data may be communicated to external parties for proper management of the relationship and in particular to the following categories of recipients, including all duly appointed Data Processors:

banks and credit institutions;
communication to entities required by law.

Disclosure: your personal data will not be disclosed in any way.
Your personal data may also be transferred, limited to the purposes indicated above, to the following countries:

EU countries;
United States: within the use of Google services, personal data may be transferred to the United States. Such transfers take place in compliance with applicable data protection laws through the adoption of appropriate safeguards.

Data Retention Period. We inform you that, in compliance with the principles of lawfulness, purpose limitation, and data minimization pursuant to Article 5 of the GDPR, the retention period of your personal data is:

established for a period not exceeding the achievement of the purposes for which they are collected and processed for the execution of contractual purposes;
established for a period not exceeding the achievement of the purposes for which they are collected and processed and in compliance with mandatory legal retention periods;
established for a period not exceeding the fulfillment of legal obligations and for protection in case of disputes.

Controller: the Data Controller, pursuant to the law, is GRUPPO FAMILIARI BETA-SARCOGLICANOPATIE (Via Civasca, 112, 23018 Talamona (SO), VAT No. 91015450140, contactable at the following details: email This email address is being protected from spambots. You need JavaScript enabled to view it., phone +39 3280075986), represented by Beatrice Vola.

The Data Protection Officer (DPO) appointed by the Controller pursuant to Article 37 of the GDPR is:

SIGMA SRL (contact: at the company’s registered office).

You have the right to obtain from the Controller the erasure (right to be forgotten), restriction, updating, rectification, portability, and objection to the processing of your personal data, as well as, in general, to exercise all rights provided for by Articles 15, 16, 17, 18, 19, 20, 21, 22 of the GDPR.

EU Regulation 2016/679: Articles 15–22 – Rights of the Data Subject

The data subject has the right to obtain confirmation of the existence or non-existence of personal data concerning them, even if not yet recorded, their communication in intelligible form, and the possibility to lodge a complaint with the supervisory authority.
The data subject has the right to obtain information on:
a. the origin of the personal data;
b. the purposes and methods of processing;
c. the logic applied in case of processing carried out with electronic tools;
d. the identification details of the controller, processors, and the representative designated pursuant to Article 5(2);
e. the subjects or categories of subjects to whom the personal data may be communicated or who may become aware of them as designated representatives in the State territory, processors, or persons in charge.
The data subject has the right to obtain:
a. updating, rectification or, when interested, integration of the data;
b. erasure, anonymization, or blocking of data processed in violation of the law, including data whose retention is not necessary for the purposes for which they were collected or subsequently processed;
c. certification that the operations referred to in points a) and b) have been notified, also as regards their content, to those to whom the data have been communicated or disclosed, unless this requirement proves impossible or involves a manifestly disproportionate effort compared to the right protected;
d. data portability.
The data subject has the right to object, in whole or in part:
a. for legitimate reasons to the processing of personal data concerning them, even if relevant to the purpose of collection;
b. to the processing of personal data concerning them for the purpose of sending advertising materials, direct sales, market research, or commercial communication.

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Supporters 2025

Written on 13 March 2025. Posted in Supporters.

100€	Donazione NN per la ricerca scientifica da Roma
15 €	Donazione sostenitori NN da Roma
500 €	Donazione NN per la ricerca scientifica da Roma
1.178 €	Contributo NN
50 €	Donazione NN per la ricerca scientifica da Treviso
150 €	Donazione sostenitori NN
700 €	Donazione NN per la ricerca scientifica
720 €	Donazione NN per la ricerca scientifica
5.769,26 €	5x1000 degli ETS
100 €	Donazioni NN per la ricerca scientifica
6.994,46 €	Contributo 5x1000 per la ricerca
50 €	Donazione NN per la ricerca scientifica
50 €	Donazione NN per la ricerca scientifica da Tirano
1.149,23 €	Contributo NN

17.525,95	TOTALE

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supporters 2024

Written on 13 April 2024. Posted in Supporters.

176,39 €	Donazione NN per la ricerca scientifica
500 €	Donazione NN per la ricerca scientifica da Roma
50 €	Donazione NN per la ricerca scientifica
700 €	Donazione x Camminata Babbi Natale Villa di Tirano
50 €	Donazione NN per la ricerca scientifica da Treviso
50 €	Donazione NN per la progetto Gaza da Roma
22.900 €	Donazione NN per la ricerca scientifica
100 €	Donazione NN per progetto Gaza da Talamona
50 €	Donazione NN per la ricerca scientifica da Talamona
150 €	Donazioni sostenitori
50 €	Donazione NN per progetto Gaza da Ancona
50 €	Donazione NN per progetto Gaza da Bologna
50 €	Donazione NN per progetto Gaza da Gordona
50 €	Donazione NN per progetto Gaza da Gordona
50 €	Donazione NN per progetto Gaza da Talamona
1000 €	Donazione NN per progetto Gaza da Milano
50 €	Donazione NN per progetto Gaza da Talamona
40 €	Donazione NN per progetto Gaza da Talamona
50 €	Donazione NN per progetto Gaza da Talamona
200 €	Donazione NN per progetto Gaza da Talamona
100 €	Donazione NN per progetto Gaza da Talamona
100 €	Donazione NN per progetto Gaza da USA
100 €	Donazione NN per progetto Gaza da Emirati Arabi
100 €	Donazione NN per progetto Gaza
30 €	Donazione NN per progetto Gaza
27.34 €	Donazione NN per progetto Gaza da USA
200 €	Donazione NN per progetto Gaza da Roma
500 €	Donazione NN per progetto Gaza da UILDM Sondrio
15 €	Donazione NN per progetto Gaza
50 €	Donazione NN per la ricerca scientifica da Talamona
5.000 €	Donazione NN per la ricerca scientifica
300 €	Donazione NN per progetto Gaza
700 €	Donazione per la ricerca scientifica Gruppo Podistico Talamona
20 €	Donazione NN per progetto Gaza da Francia
100 €	Donazione NN per progetto Gaza da USA
50 €	Donazione NN per progetto Gaza da Treviso
780 €	Donazione per la ricerca scientifica coscritti 1997 Talamona
100 €	Donazione NN per la ricerca scientifica
300 €	Donazione NN per la ricerca scientifica da Talamona
280 €	Donazione per la ricerca scientifica coscritti 2003 Talamona
58.253,8	Donazione NN
7.239,87	5x1000 2023 redditi 2022
30 €	Donazione sostenitori
21.256 €	Quarta Lotteria GFB "Tu Doni ..... Loro si Curano"
500 €	Donazione NN per la ricerca scientifica da Talamona
500 €	Donazione per la ricerca scientifica coscritti 1964 Talamona
15 €	Donazione sostenitori
7.239,87 €	5x1000 2023 redditi 2022 x Enti Terzo Settore ETS
130.253,27 €	TOTALE

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supporters 2023

Written on 13 April 2023. Posted in Supporters.

500 €	Donazione NN per la ricerca scientifica da Roma
40 €	Donazione NN per la ricerca scientifica
25.000 €	Contributo NN per la ricerca scientifica
50 €	Donazione NN per la ricerca scientifica
50 €	Donazione NN per la ricerca scientifica
12.939,31 €	Contributo 5x1000 anno 2022
20 €	Donazione NN per la ricerca scientifica
1.200 €	Donazione NN per la ricerca scientifica da Treviso
350 €	Donazione NN per la ricerca scientifica
100 €	Donazione NN per la ricerca scientifica
100 €	Donazione NN per la ricerca scientifica
100 €	Donazione NN per la ricerca scientifica
100 €	Donazione NN per la ricerca scientifica
40 €	Donazione NN per la ricerca scientifica da Sondrio
200 €	Donazione NN per la ricerca scientifica
100 €	Donazione NN per la ricerca scientifica da Lecco
200 €	Donazione NN per la ricerca scientifica
40 €	Donazione NN per la ricerca scientifica
60 €	Donazione NN per la ricerca scientifica
50 €	Donazione NN per la ricerca scientifica
100 €	Donazione NN per la ricerca scientifica
50 €	Donazione NN per la ricerca scientifica da Sondrio
300 €	Donazione NN per la ricerca scientifica da Lecco
41.389,31	TOTALE

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