The LGMD Family Guide is now available online on the TREAT-NMD® website.
This guide has been developed to support individuals and families affected by LGMD and brings together contributions from nine international clinical teams, each led by a key opinion leader and a patient advocacy representative, to ensure the content is both accurate and accessible.
It contains:
- an overview of LGMD and general information;
- detailed sections on seven specific subtypes: 1D/D, 2A/R1, 2B/R2, 2D/R3, 2E/R4, 2I/R9, and 2L/R12;
- practical guidance on topics such as swallowing, psychosocial support, and emerging treatments.
The guide was officially launched during a dedicated session at the International LGMD Conference in Orlando, where TREAT-NMD representatives introduced it to the global community.
