In this form, you can upload your medical reports to be included in the new patient registry of the GFB Foundation, the “GFB Sarcoglycan Registry”:
- blood tests
- neurological consultations
- pulmonary consultations
- spirometry, oxygen saturation monitoring, polysomnography, blood gas analysis, and other respiratory tests
- cardiology consultations
- electrocardiogram, echocardiogram, Holter monitoring, cardiac MRI, and other cardiology tests
- physiatry consultations
- radiological exams, X-rays, MRI scans, six-minute walk test, 10-meter test, four-step test, hand function tests, and other assessments
- diabetology consultations
- orthopedic consultations
- endocrinology consultations, bone densitometry / DEXA scan
- other consultations related to muscular dystrophy
- photographs and videos, such as running, walking, climbing stairs, etc.
